Majority of females with a life-long experience of CAH and parents do not consider females with CAH to be intersex

Introduction To assess opinions of females with CAH, and parents about designating this population “intersex,” particularly in legislation genital surgery during childhood. Methods We conducted a mixed-methods (quantitative qualitative) anonymous cross-sectional online survey CAH (46XX, 16+years old) independently recruited girls (2019–2020) diagnosed first year life from the United States. A multidisciplinary team drafted collaboration women parents. Fisher's exact test was used to compare female parent responses. qualitative thematic approach analyze open-ended answers for emergent categories reasons why should or not be considered as intersex. Results Of 57 participating (median age: 39 years, 75.5% ≥25year olds had post-secondary degree), all classical 93.0% underwent at median 1–2 years old. While 89.5% did endorse intersex designation remaining 5.3% (5.3% provided no answer, Summary Figure). Most (63.2%) believed separately “any laws banning allowing children's genitals” (19.3% disagreed, 17.5% neutral, 0.0% answer). common themes identified by endorsing an were: normal internal organs, sex chromosomes, personal identity, appearance, issues language, hormones, those it: community/group experiences, topic complexity. Overall, 132 participated (parent/child ages: 40/11 81.7% degree). All children 78.8% <1 95.5% 2.3% (2.3% answer), similar (p = 0.29). (81.1%) (9.1% 6.1% 3.8% slightly higher percentage than 0.01). Discussion Echoing previously published disagreement clinically intersex, majority oppose legal designation. Differing among strengthen concern one-size-fits-all childhood surgery. Differences between responses, while statistically significant, were relatively small. Conclusion